Sunday, June 29, 2014

Fabiana

I reported on Fabiana in 2013. If you look at the blogs from last year, you'll see the information about this very intelligent 7-year-old girl who has Epdermolysis bullosa. This is an inherited connective tissue disease causing blisters in the skin and mucosal membranes. It happens in 1 out of 50,000.

Fabiana lives five minutes from St. Clare School. Both of the parent work. Here in Peru, wages are very low. They can modestly provide for their family. However, Fabiana requires lots of medications, vitamins, nutritional drinks, etc. When we saw Fabiana, we provided her with a four-month supply of a nutritional drink., to be used only once a day. If she has to use it twice a day, it is only a two month supply. We also provided her with a short supply of vitamins as well.

Our committee will be talking more about Fabiana when we return. We'll have to see how we can help her.

Here are a few pictures of Fabiana.

Reported by Deb Passino


 








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2 comments:

  1. Dan Desmond Arlington HeightsJuly 1, 2014 at 5:55 PM

    Thank you. And thanks for the pictures. The www is good.

    ReplyDelete
  2. Lisa BixbyJuly 1, 2014 at 6:29 PM

    Heartbreaking photos. When we saw her last year she was well covered and the lesions on her legs did not show. I have to wonder: are her efforts directed at hiding her worst sores aggravating her condition?

    ReplyDelete

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