Update on Fabiana

Doug, Deb, Fabiana's Family and Sister Matilde

We were able to meet with Fabiana and her family. For those of you who don't know anything about her, she's an 8-year-old girl with a connective tissue disease called Epidermolysis bullosa (EB). It is a rare genetic disease. Fabiana has extremely fragile skin and recurrent blister formation, caused by friction from her clothing and shoes. It is not contagious.

Please read the blog post from last year. As you'll see from that post, Fabiana had deep scabs throughout her body. Over the past year, there has been some improvements. Her legs and arms have fewer scabs. However, her neck and ears still have some very deep blisters and scabs. She has grown and is very thin. She needs to put some weight on those bones. Her hair is much thinner this year.

An anonymous donor from St. Paul Parish donated $1,000 to the School Sisters of St. Francis for Fabiana's medical care. Thank you donor!!  Fabiana has improved. Because of your donation and lots of care from Fabiana's mom and dad, she has made some improvements.

Another St. Paul donor provided vitamins and instant breakfasts. Thank you! We hope that the next time St. Paul Parish visits with her, she'll have added on a few pounds.

Thank you donors!

You have made a difference in Fabiana's life!